Nationale Koordination Seltene Krankheiten
Coordination nationale des maladies rares
Coordinamento nazionale malattie rare
Coordination Rare Diseases Switzerland

Welcome to the kosek website. Our full website is only available in German, French, and Italian. However, this page has been provided in English to summarise key information about kosek.

What we do

Kosek is an association that coordinates projects to improve the care of people with rare diseases in Switzerland. We formally recognise diagnostic centres for individuals without a diagnosis and treatment centres for those with a diagnosed rare disease. Additionally, we facilitate networking among various stakeholders in the field of rare diseases and support efforts to raise awareness in this area.

What we don't do

Kosek is not a hospital, research centre, or laboratory. Consequently, we do not accept patients, provide diagnoses, or perform laboratory tests.

How kosek can help you

Kosek can assist if you live in Switzerland and are looking for a Rare Diseases Centre (for a diagnosis) or a Reference Centre (for the treatment of a diagnosed rare disease). If you send us an email with details about where you live and your situation, we will connect you with your regional helpline or the nearest Centre.
You may also contact helplines or Centres directly.

Helplines are available in German, French, and Italian.

Important

Receiving healthcare in Switzerland can be complicated and expensive if you do not live in the country. Therefore, we recommend that you first look for a specialised centre in your home country or a neighbouring country. Patient associations in your home country may also be able to help you find a specialised centre. If you already have a diagnosis and are looking for a centre, we recommend using the orpha.net platform, which is available in nine languages and provides a list of specialised centres in Europe.
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